Monday, April 09, 2007
Wednesday, December 27, 2006
Monday, October 23, 2006
2nd dose of Tysabri done with no problems thank god.....
Beginning today I will no longer worry about yesterday. It is in the past and the past will never change Only I can change by choosing to do so.
Beginning today I will no longer worry about tomorrow. Tomorrow will always be there, waiting for me to make the most of it. But I cannot make the most of tomorrow without first making the most of today.
Beginning today I will look in the mirror and I will see a person worthy of my respect and admiration. This capable person looking back at me is someone I enjoy spending time with and someone I would like to get to know better.
Beginning today I will cherish each moment of my life. I value this gift bestowed upon me in this world and I will unselfishly share this gift with others. I will use this gift to enhance the lives of others.
Beginning today I will take a moment to step off the beaten path and to revel in the mysteries I encounter. I will face challenges with courage and determination. I will overcome what barriers there may be which hinder my quest for growth and self-improvement.
Beginning today I will take life one day at a time, one step at a time. Discouragement will not be allowed to taint my positive self-image, my desire to succeed or my capacity to love.
Beginning today I walk with renewed faith in human kindness. Regardless of what has gone before, I believe there is hope for a brighter and better future.
Beginning today I will open my mind and my heart. I will welcome new expereinces. I will meet new people. I will not expect perfection from myself nor anyone else: perfection does not exist in an imperfect world. But I will applaud the attempt to overcome human foibles.
Beginning today I am responsible for my own happiness and I will do things that make me happy....I will put me first, for if I'm not happy I cannot make anyone else happy. I will admire the beautiful wonders of nature, listen to my favorite music, pet a kitten or a puppy, soak in a bubble bath...pleasure can be found in the most simple of gestures.
Beginning today I will learn something new; I will try something different; I will savor all various flavors life has to offer. I will change what I can and the rest I will let go.I will strive to become the best me I can possibly be.
Beginning today and ever day.....
Sunday, October 08, 2006
sorry to keep everyone in suspense....
basis like the hospital my MS clinic is at so got an appt for Tuesday. Go there get the norm Neuro evals to be told that I'm relapsing and they wanted MRI. Ok whatever Mri showed 12-15 new big enhancineg lessions, They said they wanted me to be admitted to hospital and on sterods days ago. I was terrified because thought that you could not do anything with Tysabri. So wrong agan on that steroids are ok if and only if you are having a relapse. So 4 Mri's later which by the way showed no signs of PML what so ever, 5 days later feeling almost my MS normal I guess the only residual side effect left is my vision which is horrible so excuse the spelling errors. I am going to get Tysabri again on the 20th of this month and will get Mri next day and see Dr same day.....wish me luck....
Wednesday, September 06, 2006
had to make a VERY tough decision.....
Thursday, August 31, 2006
sorry been gone 2 long
I WENT TO MY MS SPECIALIST YESTERDAY TO SEE THE RESULTS OF MY MRI. NOT GOOD NEWS NOT AT ALL. I HAVE MANY NEW ENHANCING LESIONS ALONG WITH 5 BLACK HOLES ON MY BRAIN. 4 NON MS KNOWING PPLE THE ENHANCING LESIONS ARE ACTIVE MS "SPOTS" IF YOU WILL. WHICH THAT IN ITSELF I SUPPOSE ISN'T A HUGE DEAL I'VE HAD MORE THAN I HAD YESTERDAY. MY DOCTORS WERE VERY CONCERNED BECAUSE MY BRAIN ACTIVITY IS WAY TOO ACTIVE AND SENSE I'VE BEEN ON EVERY MS MEDICINE WITH NO RESPONSE THERE IS A LOT OF CONCERN FROM THE DR'S & MY FAMILY AND OF COURSE MYSELF!!! I'M TERRIFIED!!! THEY GAVE ME SOME TIME TO DECIDE BETWEEN 2 DIFFERENT "NEW" MEDS. BOTH OF WHICH ARE SCARY. THE 1 ST ONE IS TYSABRI WHICH HAS KILLED 2 PPLE. BUT IT HAS ALSO HELPED SOOOO MANY MORE. THE DISEASE THAT IT CAN CAUSE CAN BE MONITORED FOR AND I CAN THEN STOP THE MEDICINE. THE OTHER IS CALLED PLASMAPHERESIS WHICH IS WHERE I WOULD HAVE TO BE IN THE HOSPITAL FOR AT LEAST 8 DAYS EVERY MONTH.
WHICH BASED ON THE 2 I HAVE NO IDEA WHICH ONE I WANT TO DO AND I HAVE THE WEEKEND TO MAKE A DECISION. HOW DO YOU DO THAT LIGHTLY??? LET'S SEE TAKE A DRUG THAT HAS A VERY GOOD CHANCE OF MAKING YOUR LIFE WHAT IT USED TO BE BUT OH YEAH DON'T 4 GET TO ADD IN THAT LITTLE FACT THAT THIS MED CAN KILL YOU.....OR HAVE THEM MESS WITH YOUR BLOOD STAY IN THE HOSPITAL 8 DAYS EVERY MONTH FOR A MED THAT IS IN ITS TRIAL STAGES???? I JUST DON'T KNOW WHAT TO DO??? IF I WASN'T WORRIED ABOUT MY FUTURE BEFORE (YEAH RIGHT) I SURE AS HELL AM NOW AND EVEN MORE. IT'S JUST NOT FAIR!!!!!!
Wednesday, July 19, 2006
(verb) to make worse or more severe.
The roads in our town already have too much traffic; building a new shopping mall will exacerbate the problem.