Tuesday, March 28, 2006

Happy?Weird? Scary?Proud? something Anniversary...maybe Congratulations????

Confusing title?? Tell me about it. Well today is exactly 5 years since my MS diagnoses. I really thought it would be a lot harder to deal with. I guess it just happens to fall at a bad time. It made me think back over these past 5 years waaaaay too much. Made me cray a lil this morning. Quorry said he was proud of me for makin it this far and still pushing..that made me cry too. Guess I am just an emotional basket case. Looking back to a year ago..I was wheelchair bounf and could not walk if my life depended on it, couldn't shower by myself. So I guess I am doing better than I was a year ago. Although I am not to far away from being the same as a year ago.

Got me thinking too about this years MS Walk. Like every year me the one with MS gets shit for donations. Guess being what I called homebound doesn't make it any easier. Shannon my good friend with MS is walking on my team this year. That is great!!! She has close to $200 almost..Proud of her. She just now after 8 years with MS decided to let everyone truly know about it and one of her ways to do that is to walk with me and my team in the walk this year. I'm excited!!!!My goal (as I don;t make New Year's resolutions) for this year my ONLY goal was to walk in the MS walk this year and so far looks like that isn't gonna happen. Made the same goal the last 2 years and the last 2 years was in my wheelchair. Damned Progressive MS Anyway!!!!




Thursday, March 23, 2006

Relapse, flu,puky kids, sick dog and tired cranky BITCH......

Nice title eh?? Well that describes what I have been doing since my last post. Where in the hell do I freakin start?? Ok I will start with last Friday night...

Friday--> Took Buddy to the vet because I knew that there was definetly something seriously wrong with him. First because Wed. he puked all over. Then you could tell just by looking at him that he was losing weight. He hadn't eaten since Tuesday either and believe me he is a growing pig of a puppy. Worm swas his problem which is pretty much what we thought.
He was well enought to get his Rabies shot and the other shot that puppies need (have no freakin idea what in the heck that is ).
Finished my steroids with no problem.

Saturday--> Brad woke up with one hell of a fever. Were supposed to go clothes shopping for him as he is a growing boy and needs some new pants as the school ones are already getting too short on him. We also had plans to get his mop cut as he was starting to look like a little girl. He decided that he felt well enough to get his hair cut. We did that and then took Andrew to his father's house.
Got a call from Karla (made me soooo happy) and she and her sister came over. That was nice as I haven't seen either of them in what feels like forever. It felt like back in the day too. Like the 3 of us had never been separated a day in our lives.
Brad came to my room at around 3 a.m. and tells me that he was just puking. Took his temp again and it was only 99. Worries there gone.

Sunday--> Brad's fever is back and with a vengeance. Called the doctor, he says alternate between tylenol and Motrin every 2 hours. After 2 doses of each if fever hadn't calmed down to bring him to the Urgent Care Department. Thank God fever calmed down after doing so and a million luke warm baths.
Quorry kept me up another night when I thought finally I will be able to take my pills and feel safe. He was now inflicted with fever and the pukiness that Brad had just had the night before. Joyous!!!!So of course when I thought I might have a day to try to start down maybe a recovery road from this damned relapse...didn't happen. So this is now like the 5th night of little to none on the sleep department. I bet that was really helping my relpase ya think??

Monday--> Kept Bradley home from school just to be on the safe side. Quorry still sick and needing me more than the kids ever do when they are sick. He stayed home from work and was in and out of the bathroom all day. Brad started feeling crappy again and fever comes back AGAIN!! Called DR. he gave me a few suggestions and then said to bring him to hospital if they didn't work. I wasn't super worried as his fever was only 100.9.

Tuesday--> kept Brad home again. His fever came again. By now I was freaking because I have been a mother for almost 12 years and NEVER once have any of my children kept a fever for more than a day. I have always been able to break it one way or another. So here is my dillema...Andrew has an orthodontist appt. at 9 a.m. to get the start of his braces, Quorry is hardly able to take care of himself, Brad is laying half dead on the couch and I have no idea what in the hell to do???? So I stressed out (just what the Fuck I need during a bad relapse huh??)called Dr. got the info on what to do for and with Brad, got some medicine down Quorry's throat, got Andrew ready for orthodontist, managed to get Kaylee and myself dressed. How you ask..Fuck if I know!!! Andrew got his braces, Quorry went to work (miserable might I add) and I somehow from somewhere got this 5th wind and had the energy to somewhow clean my house. Thank god for my new wheels they are so much easier than the old ones let me tell ya. Quorry shows back up like an hour after he left for work they sent him home.

Wednesday--> Everyone left for school. Thank God Brad's done being sick. So far so good for Kaylee no sign of sickness!!! Quorry still best friends with the bathroom. Me?? You ask? I have no idea how in the hell I am still going. By now I haven't slept in forever and am so tired I am not even tired. Quorry goes to work to only be sent home again. Andrew's poor mouth is all tore up even after putting the wax on the areas that are irritating his lips. He had a hard time even eating dinner. Next week will be worse as it will be the finalization of the braces.

Thursday-->Went shopping as Andrew just informs me yesterday that he doesn't fit into his dress shirt. He only wears this specific one for his chorus concerts. His concert is tonight at 7. So shopping I must go. Hell I needed to go for many other things anyhow. I used almost all my laundry soap washing puky blankets and clothe.,needed more disinfectant spray as I used all of that too. Needed to get soft unchewable foods for Andrew for next week. He will be happy as he would eat chicken noodle soup for dinner every night if I would let him. Also stocked up on more yogurt as he loves it along with all the other kids. Brad informs me that all the kids in his class agree that I am THE coolest mom because his birthday party is booked at McDonald's with Rondald McDonald. Quorry started to feel much better and it looks as though he might work a full shift tonight.

Friday--> Hopefully maybe just maybe I will be able to take care of myself tomorrow cause god know I need it. I need sleep BIG TIME!!! I am the crankiest bitch ever!!!EVen for me I am super cranky.....

Thursday, March 16, 2006

Success again (thank god) from this damned mediport.....

K well Sheila came today poked the needle in and of course no success at first. She then "manipulated" it a little bit and asked if it would bother me too much if she pushed the needle in a little deeper. Reason being is last Monday on my normal monthly steroid dosage we got success right away no problems. Difference between that needle and the 2 that were used yesterday and the one used today was the length of the needle. Remember that I have more tissue at my site than the norm as it is in breast tissue. So once she explained that I said no if it means that I won't have to be poked and prodded again tomorrow. So she pushed the needle in a little deeper (holy shit so much pressure and sooo much pain) but Guess What?? It worked and after the initial pushing in all the way no more pain. Well I was thankful for that but now as my skin is so incredibly sensitive I itch like a mutha. So she called to make sure that I was coping okay before she was leavin for the night so I explained the massive itch effect. She came back and adjusted it the best she could without taking it out. I still itch like a son-of -a- bitch but it will (hopefully) beat being repoked.

I'm of course worn out for probably 1 million reasons. Let's see where in the hell do I start with my bitch session?? I have not gotten much for sleep in the past 3-4 weeks (joyous), I'm in one hell of a killer relapse (shocked?? hell no used to these damn things ....Damn Progressive MS anyway), Of course NO sleep last night (thanks to the steroids), Had nothing to eat (again thanks to the damn steroids and the nasty they leave in my mouth), OH yeah and probably the fact that I have 4 kids and a sick puppy who is no different than a sick kid, the fact that I feel like a single Mother again so all responsibilities of the kids lie souly on me as Quorry really only sees the youngest and the oldest before work. Thank God Tomorrow is Friday and he is off work till Monday. Hmmm..think that is most of my bitch session for today at least.

My sister is coming to steal my daughter for the weekend which will be good for my daughter as she truly is the only one who gets out of the house only when I do and we all know that is close to NEVER!!! She came back from being there last weekend such a happy joyous little girl. I have the opportunity to get rid of all the boys for the weekend at my FIL's but am not going to take him up on that offer. I don't like some of the things he has said to me this week nor do I like the fact the things he has told my children. Things like question your mother's authority..WTF??? They are 11,7,and 5 what in the hell is he thinking?? I think I will be getting rid of Andrew at least as this is the last weekend he has the chance to see his (biological piece of shit) father before I put him jail for not paying child support. So I will probably let Andrew go there. He has not seen him since before X-mas. So I guess that will leave me with only Bradley for the majority of the weekend. That could be relaxing or complete opposite as he could be bored outta his mind being here as the only child. Who know my sister is funny about things she might steal him too.

Well tomorrow is my last day of the 3 day round of 'roids. Maybe by Monday I will be able to enjoy the taste of food???

Wednesday, March 15, 2006

I had a BAD day (thanx Dave for the site for music)

Explains my day after I wrote this post 2day and typing is near impossible as hands don't want movement too much.


k maybe I was I was wrong that the bitching about the mediport was over.....

Well my day (again) started out well shitty!!! The home healthcare nurse that said yesterday that she would be here at 10ish did not show until noon. Ok didn't bother me too much as I had a chance to take my sweet disabled time to finish getting the house cleaned. That honestly wasn't even what started my day out on a sour sour note..let me explain... This morning I didn't hear Andrew get up and was freaking out as he has NY state Math tests. So I got up to make sure that he was up went into kitchen and saw that his bathroom light was on along with his bedroom and hallway lights all on. So I'm thinking good he is up. Well a few more steps into the kitchen and then right on the (brand new mind you) living room carpet I see vomit like 3 little "piles". GREAT. Now I could tell that this was from the puppy. Continued along my way to Andrew's room and saw about 5 or 6 shit "piles" again from the dog. WTF!!! Anywho made my way to Andrew's room to make sure that he was ready to go and continued through the rest of the house to make sure that Buddy didn't make any messes anywhere else. So my day started so grand by cleaning up after the puppy. Just talked to my vet and she told me what to do and to bring him in if he didn't seem any better by tomorrow.

On to the mediport bullshit. So she pokes me which btw doesn't hurt as much anymore like it did the first few times that she poked me. Well no blood return great. She apologizes and "manipulates" it to see if maybe it will have a flow of blood which is needed before it can have anything be pushed into it. Well to no avail. Poked me again and we did get some blood return and she did get some heparin to let her (with resistance) go in. She hooked me up to the 'roids and as we were watching the bag well no drips. It was not going in. So she said ultimately what we do from here is up to you, you have 2 choices A) I can go back to the office and get another Huber needle or B) just start an IV in your arm. Well I would not have minded being poked a 3rd time it was the fact that this thing was going to stay in my chest until Friday that made me a little skeptical about the whole thing to begin with. So I chose to get a regular IV. Damn did it remind me of why I got that painful surgery to begin with because let me tell you my veins were being just as much of a pain in the ass as the mediport. More painful even then previous pokes already today. So tomorrow we are gonna hope for the best and pray that it will work in the mediport.

I was so freaking grateful that last night I got some good sleep finally. I fell asleep a little before 10. Woke up around 2:30 cause man did I have to piss. Of course Quorry didn't get done working till late last night so he came in the door while I was pissing. We said hello kissed and I went right back to sleep. when I got up sooo early this morning and had to deal with cleaning up that mess I was exhausted for the day already at 6 am. So I went back to bed until 7:30 got Brad up and since we didn't wake Kaylee today I went back to bed and set my alarm for 10 so I could get up for the nurse. So how is it possible that I got a good nights sleep and got to go back to bed?? Who cares Karma is on my side today (shhhh so what I had worse mishaps then I had good occurrences, Let me believe what I want damn it!!!)

On a positive health note I have an appointment with a Neuro Opthomologist. GREAT now I can get these eye problems that I have been experiencing taken care of. Yeah for the last year the problems have always been different yet still the same root of evil causing them and now I can maybe get some answers.

I'm excited for this years MS Walk as my good friend Shannon who also has MS is going to be on my team and walking (hopefully I am walking) with me. So as of right now I have 5 people on my team myself included. I know that there are at least 2 more joining. I don't think we will have the 12 like we did last year but even still I'm far from complaining. Shannon has a good start at $50. Maybe $65 not sure so far my team has acquired $65 but since I am not the team captain I can't see who has the money and from who. I will find out from my Mom who is the team Captain. Honestly all I really have to have is 80 same with everyone else that is how you get your shirt. Sounds stupid huh? Of course I want to earn way more than $80 measly bucks but I would like to get at least that much on my own. Seeing how I NEVER hardly leave my house that is hard I can only rely on the people that I sent "sponsor me" emails too. Last year I think myself I earned like 300 so that is what I set my goal for this year. Our team on the other hand more like almost 4 grand. We shall see. I will definitely post pictures here from the walk afterwards. It is so invigorating. I feel for one day a year not so alone as most of the people there are the same as I am. Last year the weather was better than the year before so I'm praying that it will be even better this year. At least I have a different better wheelchair this year. I will feel a lot safer too this one has a seat belt My Dad goes crazy and have you ever been down Buffalo,NY sidewalk? Regardless of how good I am doing I will still need to take it maybe only sit in a lil but 5 miles is a long trek.

Tuesday, March 14, 2006

Well I am referring to yesterday's appointment of course. Ok to start my day off I was terrified, in more pain than ever and wondering how in the hell I was gonna get to this important emergency appt. That I HAD to make. My mom was not home to take me I'm assuming that she was at work. Quorry could not take me as he had to work (he would have taken me if that is what it would have came down to) so I called my mother- in- law and asked her. She said yeah but tomorrow would be better for me. I said well I have an appointment for 2 today, so she said yes and that my father in law would watch Kaylee and in case we weren't gonna be back for the boys he would come here and watch them till we got back. I already knew that we were not gonna be back for the boys as Andrew gets home at like 10 to 3. That is a whole different issue with Andrew and my FIL. I will explain in a bit. Anyway Quorry's Aunt Kelly was gonna go with us to the doctor which that's cool someone else to chat with on the way. Anyway we get there and I'm called back. The usual blood pressure, weight(which I got bitched at again because I lost 7 lbs again it has been 2 months since I was last weighed), questions like why was I there and the timed walk they make me do. Then the doctor came and pretty much asked the same questions. She spent a lot of time examining my eyes which definitely scared the living piss out of me!! She then did the normal Neurological Examine that I could probably be hired to do as I'm so familiar with it. She said it was way bad compared to the last one from January. In January I had 95%strength in both sides of my body of a normal 26 year old. Yesteday my right side was 98%weaker than my left side and my left side wasn't too much different than before. She wanted me to get an MRI yesterday which would have been great I could have gotten some uninterrupted sleep. She also wanted me to get an EEG and a visual response test. Great I can now get the correct treatment right?? WRONG!!DEAD WRONG!!!

Before I was called back to the examining room my MIL's "friend" called her and said that once again her husband had beat her. So of course her fucking friends are more important thatn family. Ask her and she claims different. She is always blah blah blah which to her translates to " I am there for my family no if ands or buts" BULLSHIT!!! Selfish? Maybe. She should have just told me that she was too busy with her friends to take me rather than wasting my time and the doctor's time. I know that the dr. wanted to do soooo much more but I had to make bullshit excuses because my MIL just HAD to go rescue her "frind" which by the way has had the most horrible things to say about my MIL. whatever to each their own user I guess. Quorry told me just to not talk to her anymore because it hurt him that I had to have all that stress yesterday on top of what I am already going through.

Anyway they (being dr's office) called today and said IF (being the key word in my eyes) things don't start to slow down in the progression department that maybe chem would be a good idea. HOORAY!! I LOVE chem it makes me feel almost normal again. Let me tell ya though I will not ask for the help of ANYONE since I am such a burden.

By the way don't forget that today is MS Day of Hope....

(btw I typed out a whole shit load more but it got lost somewhere which pisses me off beause I need that release hopefully I can find it!!!)
Well I am referring to yesterday's appointment of course. Ok to start my day off I was terrified, in more pain than ever and wondering how in the hell I was gonna get to this important emergency appt. That I HAD to make. My mom was not home to take me I'm assuming that she was at work. Quorry could not take me as he had to work (he would have taken me if that is what it would have came down to) so I called my mother- in- law and asked her. She said yeah but tomorrow would be better for me. I said well I have an appointment for 2 today, so she said yes and that my father in law would watch Kaylee and in case we weren't gonna be back for the boys he would come here and watch them till we got back. I already knew that we were not gonna be back for the boys as Andrew gets home at like 10 to 3. That is a whole different issue with Andrew and my FIL. I will explain in a bit. Anyway Quorry's Aunt Kelly was gonna go with us to the doctor which that's cool someone else to chat with on the way. Anyway we get there and I'm called back. The usual blood pressure, weight(which I got bitched at again because I lost 7 lbs again it has been 2 months since I was last weighed), questions like why was I there and the timed walk they make me do. Then the doctor came and pretty much asked the same questions. She spent a lot of time examining my eyes which definitely scared the living piss out of me!! She then did the normal Neurological Examine that I could probably be hired to do as I'm so familiar with it. She said it was way bad compared to the last one from January. In January I had 95%strength in both sides of my body of a normal 26 year old. Yesteday my right side was 98%weaker than my left side and my left side wasn't too much different than before. She wanted me to get an MRI yesterday which would have been great I could have gotten some uninterrupted sleep. She also wanted me to get an EEG and a visual response test. Great I can now get the correct treatment right?? WRONG!!DEAD WRONG!!!

Before I was called back to the examining room my MIL's "friend" called her and said that once again h

I give up.....and today is not the day to feel this way....

Well I am referring to yesterday's appointment of course. Ok to start my day off I was terrified, in more pain than ever and wondering how in the hell I was gonna get to this important emergency appt. That I HAD to make. My mom was not home to take me I'm assuming that she was at work. Quorry could not take me as he had to work (he would have taken me if that is what it would have came down to) so I called my mother- in- law and asked her. She said yeah but tomorrow would be better for me. I said well I have an appointment for 2 today, so she said yes and that my father in law would watch Kaylee and in case we weren't gonna be back for the boys he would come here and watch them till we got back. I already knew that we were not gonna be back for the boys as Andrew gets home at like 10 to 3. That is a whole different issue with Andrew and my FIL. I will explain in a bit. Anyway Quorry's Aunt Kelly was gonna go with us to the doctor which that's cool someone else to chat with on the way. Anyway we get there and I'm called back. The usual blood pressure, weight(which I got bitched at again because I lost 7 lbs again it has been 2 months since I was last weighed), questions like why was I there and the timed walk they make me do. Then the doctor came and pretty much asked the same questions. She spent a lot of time examining my eyes which definitely scared the living piss out of me!! She then did the normal Neurological Examine that I could probably be hired to do as I'm so familiar with it. She said it was way bad compared to the last one from January. In January I had 95%strength in both sides of my body of a normal 26 year old. Yesteday my right side was 98%weaker than my left side and my left side wasn't too much different than before. She wanted me to get an MRI yesterday which would have been great I could have gotten some uninterrupted sleep. She also wanted me to get an EEG and a visual response test. Great I can now get the correct treatment right?? WRONG!!DEAD WRONG!!!

Before I was called back to the examining room my MIL's "friend" called her and said that once again her husband beat her and she was at my MIL's house and hurry home please. So I had to make all these stupid bullshit excuses as to why I could not get any of these tests done that hello duh could have told me and the dr. that maybe steroids would not be enough. I promised myself that I would not let her do this again. She brags and says blah blah blah ooppps sorry that translates to " My family comes first", yeah BULLSHIT!!! I'm sorry that her "friend" which by the way if only she knew the shit that this "friend" has talked about her in the past and the things that she has told her husband she would probably be floored. Anyway I'm sorry that her "friend(s)" are soooo much more important than family. Of course she will deny that but in the past few months alone she has proven the complete opposite to me!!
I of course feel selfish saying all of this!!! But she said that she would help me through my rough times and well all she did for me yesterday was help me have rough times. I wish that she would have just told me no to take me to the doctor rather than take me for basically no reason. Honestly I did not find anything out while there that I didn't already know. I knew before I went that I was heading in for on hell of a relapse. Basically that is all that I found out yesterday due to the fact that I could not get any of the appropriate testing done. So for now it is another 3 days if steroids and to call if things proceed to get worse, if I pass out again and if my sleeping does not get any better or if my appetite does not get any better. I could tell by the way the doctor was she wasn't telling me something but I wasn't asking any questions as I was tired, in pain and down right exhausted. I did however get the call today that maybe I should get a treatment of the chemo. I'm so happy that they are giving me this option as I LOVE the chemo I feel like a normal person afterwards. They are going to decide based on results. From what I was told today things are only going to get a lot worse way before they get even a little better. Story of my life eh? This feels sorta like deja vous. Almost a year ago the same thing happened almost exactly to a T. but whatcha gonna do??
The way I am looking at things right now my family can go fuck themselves (another selfish moment??) I am there when they need me to be. I keep my MIL's secrets and believe me you she has many. Same with my FIL. yeah maybe that is different then doing the physical things but what do you want from someone who can't even walk to the bathroom by herself??

Ok now onto my FIL he thought it would be ok to let Andrew stay home by himself for an hours or so because and I quote " he is 11 years old he is old enough and mature enough to be home alone for that long". Ok maybe I would agree if A) Andrew showed some responsibility B) Old enough my ass he is 11 years old for christs sake!! so my FIL and I had a little argument before I went to dr. Then my MIL's Blazer started acting up again and because my Dad fixed it, it was all his fault in my FIL's eyes. And let me tell you he made sure that I knew that. If he wants to talk shit about his mechanic well power to him but his mechanic is my Dad so don't talk the shit to me. All I would have to do is call my Dad tell him all the shit that my FIL has talked about him and all the bad things he tells everyone else about his experiences and my Dad would be DONE with them. I would put more details in here about it but my MIL reads this so I will not.

So anyway my day was wasted yesterday..and every day when someone with MS is like this makes one hell of a difference....

Don't forget Today is MS Day of Hope. Join people across the country in the fight to end MS. Learn more and get involved!

Monday, March 13, 2006

okay Tysabri (regardless the "possible" bad effects) is sounding like a great idea.........

MS Awareness Week: March 13-17, 2006
come face to face with MS

ok let me explain this. I have these new symptoms that are terrifying me, I have never had anything this scary before. I have a very hard time even talking and have these bouts of blurred vision right after the talking "spells" occur. Ok so Friday when it started I thought yeah well no big deal it will be gone tomorrow. WRONG. Saturday it was a lil worse where the spells came roughly every 2 hours or so. Then Sunday came and still the same. That is until Sunday evening. My sister was over and we were having dinner and of course conversating. I noticed but tried to "hide" the fact that I sounded like a drunken bafoon. Well then Quorry said, "Amanda, it is getting worse everyday." Now I know that when he points something out it is BAD!!! Mainly because he knows how it bothers me when he does point shit out, I guess it makes me feel like I'm worthless or something, Anyway by the time bed time rolled around I was having these "episodes" roughly every 15-20 minutes. That is scary!!! So this morning I got an emergency appointment with my MS Specialist and I see her at 2. Gotta love a place that gets you in right way when you need huh??

On a good note well maybe good is a weird word to use but all that came to my mind...Please don't forget that this week is MS Awareness Week. So please if you have a MS Hope bracelet wear it, a MS ribbon of hope wear it , an MS magnet put it on your car, and MS Walk t-shirt wear it!!! We have to let the world be aware of our disease so that maybe many more will help us in this fight!!!! I have all of the above mentioned items and today especially considering how shitty I feel I will be doing all of the above!!!! Also I signed up for my 3rd MS walk today!!! It just kind of saddens me as it looks like this will be yet another year that I will not be able to walk in it!!! Last year I was real bad off at this time so of course by May I wasn't doing any better. At any rate if anyone would like to pledge me here is the link to do so. I hope that everyone does something to help us raise money for ourselves..whether it be by pledging someone or by doing an event yourself.

Wednesday, March 08, 2006

To Tysabri or not Tysabri..that is the question....



Deutsche Bank Securities upgraded shares of Biogen Idec to "buy" from "neutral" as the research firm anticipates better-than-expected labeling for multiple sclerosis drug Tysabri.
Earlier today, an independent advisory panel unanimously recommended Tysabri return to the market in some form. In addition, the 12-member committee voted 7-to-5 in favor of Tysabri as a first-line treatment.
The Food and Drug Administration is not obligated to follow the panel's vote but historically acts in concert.
"While we would expect Tysabri to be used predominantly as second-line treatment, the importance of opening up for first line use would allow physicians flexibility to use Tysabri in more difficult-to-treat cases earlier on and allow faster penetration into the non-responder market," wrote Jennifer Chao of Deutsche Bank, in a report sent to investors on Wednesday afternoon.
Chao raised the price target on Biogen Idec (nasdaq: BIIB - news - people ) to $63 from $38. She expects the FDA to approve Tysabri by late March and projects 2006 and 2007 sales of $125 million and $325 million, respectively.
Tysabri was pulled from the market by Elan (nyse: ELN - news - people ) and Biogen Idec in February 2005 after three patients developed a rare brain disorder known as progressive multifocal leukoencephalopathy, or PML. Two of the cases were fatal.
The analyst said a critical factor in determining the scope of potential Tysabri treatment will be the safety monitoring system planned by the companies.
"We continue to be watchful of a likely extensive 'risk minimizing system' for tracking safety and clinical events which could as a gating factor to treatment," the analyst said.


So if possible do I take this drug?? It is quite the scare but on the same note I have taken my risks with the Novantrone and have heart damage a little bit from it. What in the hell do I do if this drug is an option for me???
On a side note here is a pic of my 4 kids not the greatest because it is on a floppy but once I get the actual pictures I will post more of them so they at least are decent pictures.


Monday, March 06, 2006

Wow feels like it has been forever since posting here...

Wow!!! I have been so busy in a lot of different ways but looking back at the past week or so it doesn't seem like it but let me tell ya my body sure as hell feels it BIG time!!!! I got Gerrott on Thursday had to take Kaylee to dr. on thursday also. Went for family pictures on Friday, had b-day party on Saturday, drove to Pennsyltucky ad mdmhvonpa would call it..(LOL). What a ridiculous trip that was. Have done it a million zillion gazillion times but this time we were excited because we found a shortcut which if the truck we were driving wasn't bein an asshole we would have made our normal 6 hour trip in like 3.5 hours. I mean we still made it under 6 hours but still my legs they were not liking being cramped and not able to stretch at all!!! Oh yeah and mdmhvonpa I got off the exit on 15 right before the Turnpike. So I sorta feel your pain man was there a lot of traffic. I'm sure it probably was a different area maybe from where you normally speak of. My son lives in Elizabethtown which is maybe (the roads and the way we took) 15-20 min outside of the capital. I like PA roads better than NY's though they are sooo much more of a smooth ride.

DAmn it we are definitely plagued by Congunctivits in this quatantined house. Now Kaylee has it and that scares me I do not need more health crap nor more freakin meds now do I???? Speaking of meds I got my steroids today and told the nurse that I am done with them they don't do anything for me anymore but keep me awake for days which I've already been up for days and days with 2 hours sleep here and there.

I am gonna put the picture up on here of all 4 of my kids together. It is not the greatest as it is on disk, but when I get the actual pictures I will post more..but sorry there will be none on here that contain me as I looked like shit(doesn't everyone think that about themselves in a pic??)

Sorry that I'm not posting too much I'm tired and wired all at the same time and wanna get up and do my normal scrub everything ins ight taht I do on steroid day. Will get back into my normal bitch modes oopps I mean normal posting more often. I hope everyone is doing well and wish ya luck!!!
If you are viewing my page PLEASE take the time to donate to People with MS at www.nmss.org Thanx!!!
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