Monday, March 13, 2006

okay Tysabri (regardless the "possible" bad effects) is sounding like a great idea.........

MS Awareness Week: March 13-17, 2006
come face to face with MS

ok let me explain this. I have these new symptoms that are terrifying me, I have never had anything this scary before. I have a very hard time even talking and have these bouts of blurred vision right after the talking "spells" occur. Ok so Friday when it started I thought yeah well no big deal it will be gone tomorrow. WRONG. Saturday it was a lil worse where the spells came roughly every 2 hours or so. Then Sunday came and still the same. That is until Sunday evening. My sister was over and we were having dinner and of course conversating. I noticed but tried to "hide" the fact that I sounded like a drunken bafoon. Well then Quorry said, "Amanda, it is getting worse everyday." Now I know that when he points something out it is BAD!!! Mainly because he knows how it bothers me when he does point shit out, I guess it makes me feel like I'm worthless or something, Anyway by the time bed time rolled around I was having these "episodes" roughly every 15-20 minutes. That is scary!!! So this morning I got an emergency appointment with my MS Specialist and I see her at 2. Gotta love a place that gets you in right way when you need huh??

On a good note well maybe good is a weird word to use but all that came to my mind...Please don't forget that this week is MS Awareness Week. So please if you have a MS Hope bracelet wear it, a MS ribbon of hope wear it , an MS magnet put it on your car, and MS Walk t-shirt wear it!!! We have to let the world be aware of our disease so that maybe many more will help us in this fight!!!! I have all of the above mentioned items and today especially considering how shitty I feel I will be doing all of the above!!!! Also I signed up for my 3rd MS walk today!!! It just kind of saddens me as it looks like this will be yet another year that I will not be able to walk in it!!! Last year I was real bad off at this time so of course by May I wasn't doing any better. At any rate if anyone would like to pledge me here is the link to do so. I hope that everyone does something to help us raise money for ourselves..whether it be by pledging someone or by doing an event yourself.


Blogger mdmhvonpa said...

Hrmmm ... I put a MS Magnet on my PC and now my PC is acting like it has MS!!!! Seriously though, make sure you get that bout taken care of. It sounds like you are having a relapse and will probably need a steroid treatment.

8:11 AM  
Blogger amanda said...

yep too funny about the puter and MS!!! I'm gonna put details on my appt. from yesterday in the next post.

4:01 PM  

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