Wednesday, April 12, 2006

MRI was worse then the doctor led me to believe on the phone last week.....

Went to MS Specialist today. She told me that the added drug that would best benefit me would be the Novantrone. I was a lil skeptical as I only have a few lifetime doses of this chemotherapy left before I max out on the dosage. I then questioned as to why this was my best option especially considering aside from this recent little bout of Optic Neuritis I feel pretty good. At least good enough to not feel that I need this drug. She said that my best bet for future health and to be able to stay feeling this "good" would be to do this. I then again questioned this as previously stated I only have a few LIFETIME doses left (don't forget also that I've already minor little bit cardiac toxicity from this chemo). She then said well there are 2 other chemotherapy choices to choose from. I didn't want to try something new that to me I have no clue as to how I will feel as with the Novantrone I absolutely LOVE it makes me feel like a whole new person. So I'm a lil scared to say the least. I will also for the first time be getting it the "proper" way. Where before I would get 1/3 dose every 4 weeks this time I will be getting the full dose every 12 weeks. I am going to start next week and then see the doctor again in 3 months so not sure if there will be a second full dose.So that is all that I have to report for now. I'm extremely exhausted as I have been non-stop since Saturday and am ready to collapse...........


Blogger personallog! said...

Aaaah bless babe, I wish I could give you some advice on this but I am looking to you for future advice if I am compleatly honest. As always my thoughts are with you and I am sending mental hugs from afar!
Love you babe(you better smile!)

5:35 AM  
Blogger mdmhvonpa said...

Uff-dah. I'm always a bit wary about what the number of lifetime doses are .... how would you count this?

10:11 AM  
Blogger Jaime said...

Oh Amanda, I am so sorry to hear this. Please remember you are not alone in this. There is a lot of research being done currently, so their IS still hope. You are in my thoughts. Please take care and try to get to feeling better soon. As always, if you need anything, you know where I am. :) Jaime

4:26 PM  
Blogger amanda said...

Well Dave You have been on the smurf blood before..this I'm not afraid of I LOVE how it makes me feel after a week. I guess it is just the facts that lead as to why I need to do this treatment again.

I'm glad (in a messed up strange kinda way) that there is someone who is looking to ME for advice in the future.

Take care. Less than a month left before the jump!!! Proud of you on that I am only "walking" (can't walk no 5 miles using my new wheels legs whatever)

3:15 PM  
Blogger amanda said...

I myself and a lil wary on the number of lifetime doses too. I do know that aside from the required MUGA scan before each treatment I need to receive a few more heart tests each time as I've already had some minor heart damage from this drug.

3:16 PM  
Blogger amanda said...

Thanks for the positive reinforcement it is ALWAYS appreciated.

3:17 PM  

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